Webinars & Events
Upcoming
Join Us for the LMNA Patient Dinner in Paris – May 22nd, 2025
We are excited to announce a special Patient Dinner taking place on May 22nd, 2025, at 20:00, during the Laminopathies meeting in Paris. This event will be held at a restaurant near the conference venue, offering a wonderful opportunity for patients, families, and supporters to connect, share experiences, and enjoy…
More information / register...
More information / register...
Webinar: Dr. Dominic Abrams on LMNA Cardiomyopathy
Join us for a webinar with Dr. Dominic Abrams from Boston Children’s Hospital, an expert in LMNA cardiomyopathy and cardiovascular genetics. The session will take place on Wednesday, June 4th, at 10:00 AM EST.
Register now for this webinar!
Register now for this webinar!
LMNA Patient Meetings
LMNA patient meeting – March 2025 (March 30th 2025)
More information / RegisterPlease join us for our video group chat for patients with LMNA gene mutations on March 30th from 12-1:30pm EST (6-7.30pm CEST). The chat is a great opportunity to connect with other patients, ask questions, and gain support from people who “get it”.
The upcoming LMNA patient meetings in 2025 will be on:
May 18, 2025
June 29, 2025
August 31, 2025
October 26, 2025
December 28, 2025
(Registration will open after the last LMNA patient meeting.)
Past Webinars & Events
LMNA Cardiac Past Webinars
LMNA Cardiac January 2025 Patient Meeting
LMNA Cardiac’s Hybrid Indoor Cycling Event
LMNA Cardiac September 2024 Patient Meeting
LMNA Cardiac April 2024 Patient Meeting
The who, what and when of implantable cardioverter defibrillators in LMNA Cardiomyopathy
SADS Foundation Past Webinars
The following list has been curated for LMNA relevance.
SADS Foundation: Pregnancy – Patient Perspectives Webinar
Gene Therapy – What is it? How Does it Work?
Sports and Exercise Patient Perspectives
Clinical Trials: Learn the Basics
Genetic Testing – What’s All The Fuss About A VUS
What is an ICD, and what’s an S-ICD?
What is Ventricular Tachycardia?
Participating in Clinical Trials
Mind Over Body: Trusting Your Safety Nets
More SADS webinars can be found at:
- https://sads.org/resources/healthcare-professionals/webinars-seminars-conferences/
- https://sads.org/what-now/living-with-sads-webinars/past-webinars/
- https://www.youtube.com/@sadsfoundation/videos
DCM foundation Past Webinars
Help Us Save Lives – Become an Advocate
Understanding and Navigating DCM – Expert and Patient Perspectives
Understanding Cardiomyopathy Genetic Therapies – Our Hope for the Future
2023 DCM Patient & Family Conference
DCM & Heart Transplant – 3 Patient Stories
DCM Basics – Causes, Symptoms and Treatments
Cardiomyopathy, Genetics, and YOU – webinar
Myths and Truths About Clinical Trials
“Healthy Together” Wellness Webinar
Cardiomyopathy & Genetics Webinar / Launch of “GCAC” – Get the Facts & Save Lives
Support for Your DCM Journey – DCMF Programs, Services, and Helpful Advice
Insights and Hope When Living with a Heart Device
DCM Patient and Family Conference: Session #3 Patient-to-Patient Panel Discussions
DCM Patient and Family Conference: Session #2 The Latest in DCM Research and Therapies
DCM Patient and Family Conference – Session #1: Dilated Cardiomyopathy Education
DCM Gene Therapy Advancement at Tenaya Therapeutics
What You Should Know About Cardiomyopathy & SILENT Sleep Apnea
The Heart Transplant Journey – What You Should Know
Causes of DCM & Stages of Heart Failure
DCM Foundation’s Strategic Pillars Unveiled – What this Means for You
Ask a Heart Failure Specialist
Living with DCM – A Patient’s Perspective
The Latest in DCM therapies in Development – with Tenaya
DCMF Webinar: “DCM & Heart Transplant: 3 Patient Stories”
The Science Behind DCM Gene Therapies
Living with a Pacemaker or ICD
The Latest in DCM Genetics Research & Therapies in Development (2021)
Ask a Cardiologist your Questions about DCM
Living with a Pacemaker or ICD: Insights & Hope
More DCM Foundation webinars can be found at https://dcmfoundation.org/webinars-news/
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Show Your Support
Every contribution, regardless of its amount, fuels crucial efforts in research, medical education, patient advocacy, and raising awareness about LMNA cardiac diseases.
You can make a difference in various ways: by committing as a regular monthly donor, offering a single donation, organizing fundraising events both online and in person, contributing to our special tribute funds, or through your unique fundraising initiatives!
DonateDonateYou can make a difference in various ways: by committing as a regular monthly donor, offering a single donation, organizing fundraising events both online and in person, contributing to our special tribute funds, or through your unique fundraising initiatives!