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Expanding Our Network: Our Co-Founder’s Upcoming US Tour 

We are excited to share the progress of our LMNA Promotion and Awareness Campaign through LMNAcardiac.org, our dedicated network for LMNA cardiac diseases. The growing visibility and focus on LMNA cardiac diseases have led to increased funding for research, including the recent LeDucq grant.

To further strengthen our network and raise awareness in the US, our Co-founder Stefan and his family will be traveling for 2 to 3 months to meet with LMNA patients, experts, and researchers. This visit aims to foster connections, build a stronger network, and increase awareness about LMNA cardiac diseases. If you are an LMNA patient or researcher based in the US and would like to connect with Stefan, please let us know by contacting us at info@lmnacardiac.org.

We look forward to scheduling a meeting with you!

September 2024:

  • September 14-17: New York
  • September 17-20: Philidelphia
  • September 20-24: Boston
  • September 26-29: Toronto

October 2024:

  • Columbus, Ohio
  • Chicago
  • Denver (Salt Lake City)
  • San Fransisco
  • Los Angeles
  • San Diego

November 2024:

  • Houston, Texas
  • Austin, Texas
  • Orlando
  • Miami

Current location:

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Every contribution, regardless of its amount, fuels crucial efforts in research, medical education, patient advocacy, and raising awareness about LMNA cardiac diseases.

You can make a difference in various ways: by committing as a regular monthly donor, offering a single donation, organizing fundraising events both online and in person, contributing to our special tribute funds, or through your unique fundraising initiatives!
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