Register for our cycling event and help raise funds for LMNA research!

Patient Meeting

We are excited to invite you to a special patient meeting dedicated to individuals and families affected by LMNA-related conditions. This event is designed to foster connections, share experiences, and build a supportive community among those who understand the unique challenges of living with these conditions.

Next Event Details:
Date: September 15h, 2024
Time: 11.00 AM (Central Time) / 12:00 PM Eastern Time (Time Zone Converter)
Location: Google Meet

Why Attend?
This gathering is more than just a meeting—it’s a chance to connect with others who share your journey. Whether you’re newly diagnosed or have been managing your condition for years, this event provides an opportunity to:

  • Share Your Story: Hear from others and share your experiences in a safe, supportive environment.
  • Build Connections: Meet other patients and families who understand what you’re going through. Form lasting friendships and support networks.
  • Learn and Empower: Gain insights from guest speakers and fellow patients on managing your condition, staying hopeful, and living your best life.

Who Should Attend?

  • Patients diagnosed with LMNA-related conditions.
  • Family members, caregivers, and loved ones who support someone with an LMNA condition.
  • Anyone interested in learning more about the LMNA patient community.

How to Register:
Please fill out the registration form to confirm your attendance. Early registration is encouraged to ensure you receive all event details and updates.

Registration for our September patient meeting is open!

After registering you will be receive an invitation via email and be subscribed to our mailing list.

Show Your Support

Every contribution, regardless of its amount, fuels crucial efforts in research, medical education, patient advocacy, and raising awareness about LMNA cardiac diseases.

You can make a difference in various ways: by committing as a regular monthly donor, offering a single donation, organizing fundraising events both online and in person, contributing to our special tribute funds, or through your unique fundraising initiatives!
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