LMNA Cardiac News
Help Us Grow the LMNA Cardiac Community – Patient Meeting & Laminopathies Meeting Reminders
January 22, 2025
LMNA Cardiac Newsletter Help Us Grow the LMNA Cardiac Community -Patient Meeting & Laminopathies Meeting Reminders Dear Sir or Madam,At LMNAcardiac.org, we’re committed to making our network and foundation as personal and impactful as possible. That's why we've updated our About Us page to give you a closer look at the dedicated team behind…Meet the Team Behind LMNAcardiac.org
January 21, 2025
At LMNAcardiac.org, we’re committed to making our network and foundation as personal and impactful as possible. That's why we've updated our About Us page to give you a closer look at the dedicated team behind the scenes. Our team works tirelessly to expand the network, raise awareness, and provide support…Help Us Grow the LMNA Cardiac Community!
January 21, 2025
We’re always looking to expand our network of LMNA patients and experts—and we need your help! Our community currently spans more than 50 countries, but in some regions, we still have only a few patients and experts connected. By spreading the word about LMNAcardiac.org to family members, other patients, and…Registrations Now Open for the 5th International Meeting on Laminopathies!
January 1, 2025
We are excited to announce that registrations are officially open for the 5th International Meeting on Laminopathies, taking place from May 21–23, 2025, at the historic Sorbonne Université, Campus des Cordeliers in Paris, France. This highly anticipated event brings together experts, researchers, and patients to discuss the latest advancements in laminopathy…Thank You for an Incredible 2024 – Let’s Start 2025 Strong!
January 1, 2025
As we reflect on 2024, we are filled with gratitude for everything we’ve accomplished together. Whether it was raising awareness, advancing research, or building stronger support networks, you were a vital part of something extraordinary.But our work is far from over, and your continued support is what makes everything possible.By…Groundbreaking Treatment at TGH Offers New Hope for Rare Cardiac Disease Patient
December 26, 2024
In a remarkable development for patients with rare cardiac conditions, Tampa General Hospital (TGH) has successfully treated a Florida woman with a cutting-edge device designed to manage her life-threatening heart disease. The patient, diagnosed with a rare genetic cardiac disorder, received a device that monitors and supports heart function in…Exciting News: 5th Laminopathies Meeting Website is Live!
December 25, 2024
We are thrilled to announce that the official website for the 5th Laminopathies Meeting is now online! The meeting will take place from May 21 to May 23, 2024, in the beautiful city of Paris, France. This is a fantastic opportunity to connect with leading researchers, clinicians, and members of…🎄✨ Merry Christmas & Happy New Year from LMNAcardiac.org!❤️
December 25, 2024
As we reflect on this past year, we are deeply grateful for your continuous support, dedication, and kindness. Together, we’ve built a stronger LMNA network, supporting each other and making strides toward a brighter future for the LMNA cardiac community. 💪💙 Let’s make an even bigger difference together in 2025!…LMNA PRIORITY Project Kickoff Meeting in Paris
December 21, 2024
We are thrilled to share that the LMNA PRIORITY Project is set to officially launch soon! Recently, all the team leads came together in Paris to align their efforts and lay the groundwork for groundbreaking research.Starting January 1, 2025, this consortium will focus exclusively on advancing LMNA-related research, bringing together…Succesfull fundraising event by a German patient
December 21, 2024
✨ A heartfelt WOW and THANK YOU to Katrin, a remarkable LMNA patient from Germany, for organizing the highly successful “Running for a Healthy Heart” charity run! 🏃♀️💞 This inspiring event brought people together to raise awareness and funds for LMNA cardiac research and support. Katrin’s dedication and effort serve…
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You can make a difference in various ways: by committing as a regular monthly donor, offering a single donation, organizing fundraising events both online and in person, contributing to our special tribute funds, or through your unique fundraising initiatives!
DonateDonateYou can make a difference in various ways: by committing as a regular monthly donor, offering a single donation, organizing fundraising events both online and in person, contributing to our special tribute funds, or through your unique fundraising initiatives!