LMNA Cardiac News
5th International Meeting on Laminopathies
August 29, 2024
Dates: May 21-23, 2025Location: Sorbonne Université, Campus des Cordeliers, Paris, France Welcome to the 5th International Meeting on Laminopathies We are excited to invite you to the 5th International Meeting on Laminopathies, organized by the European Consortium of Lipodystrophies, which will be held from May 21-23, 2025, at the historic…Expanding Our Network: Our Co-Founder’s Upcoming US Tour
August 14, 2024
We are excited to share the progress of our LMNA Promotion and Awareness Campaign through LMNAcardiac.org, our dedicated network for LMNA cardiac diseases. The growing visibility and focus on LMNA cardiac diseases have led to increased funding for research, including the recent LeDucq grant. To further strengthen our network and…LMNA PRIORITY project awarded prestigious Leducq grant
July 17, 2024
The PRIORITY project has received a grant of $8,000,000 from the Leducq Foundation. The grant was awarded to the consortium for research into dilated cardiomyopathy (LMNA-DCM). The project is called PRIORITY: Cardio-LaminoPathy: fRom pathomechanIsms tO peRsonalIzed TherapY. LMNA-related dilated cardiomyopathy (LMNA-DCM) is a severe and inherited disease caused by mutations…PSIDER-Heart and LMNA Heart Disease
July 15, 2024
What is PSIDER-Heart?PSIDER-Heart is a research project in which various scientists and patients work together to understand more about inherited heart muscle diseases (also called cardiomyopathies) and to find out whether these diseases can be cured with new technologies. Inherited cardiomyopathies are a group of disorders caused by mutations in…April Patient Meeting with Guest Rogier Veltrop
March 26, 2024
Update: Thank you to everyone that joined! Keep an eye our for future meetings in our newsletter! Join us on April 28th at 12 pm Eastern Time / 6 pm CEST for an empowering patient meeting focused on the latest in cardiac LMNA research, with our guest Rogier Veltrop. This…Survey: Technology for LMNA Cardiac Diseases
March 6, 2024
In the fast-paced world of medical advancement, technology, including AI, offers groundbreaking possibilities for research and therapy development. We're eager to explore diverse viewpoints on leveraging technology to accelerate these breakthroughs. Whether you're in healthcare, research, or simply keen on the potential of tech in medicine, your insights matter. Every…LMNA Cardiac’s Hybrid Indoor Cycling Event
February 18, 2024
We're thrilled to announce an exciting collaboration between the LMNA Cardiac Foundation and the Netherlands Heart Institute for a groundbreaking hybrid indoor cycling (spinning) event! Set to take place later this year in the crisp autumn season, this event aims to raise funds for critical LMNA research. Register Now! Date:…Introducing LMNA Helper: Your AI Companion for LMNA Cardiac Diseases
December 19, 2023
Welcome to a new era of support and understanding with the launch of LMNA Helper! We're excited to unveil this first-of-its-kind AI virtual companion, meticulously crafted to offer guidance and information about LMNA cardiac diseases. Whether you're directly affected, a caring family member, or a dedicated healthcare professional, LMNA Helper…Help Us Compile LMNA Medical Provider Information
February 22, 2023
Please send your responses to the questions below, via email to info@lmna-cardiac.local.We suggest that you copy the questions, paste them and provide responses after each question.Your email address will be kept confidential and will not appear in the document that we are putting together. And, of course, we will not be…Pfizer to Discontinue Development Program for PF-07265803 for LMNA-Related Dilated Cardiomyopathy
August 4, 2022
Pfizer Inc. (NYSE: PFE) announced that an interim futility analysis of the global Phase 3 trial, REALM-DCM, designed to evaluate the efficacy and safety of PF-07265803 in patients with symptomatic dilated cardiomyopathy (DCM) due to a mutation of the gene encoding the lamin A/C protein (LMNA), indicated the trial is…
News & Events
Subscribe To Our Newsletter
Show Your Support
Every contribution, regardless of its amount, fuels crucial efforts in research, medical education, patient advocacy, and raising awareness about LMNA cardiac diseases.
You can make a difference in various ways: by committing as a regular monthly donor, offering a single donation, organizing fundraising events both online and in person, contributing to our special tribute funds, or through your unique fundraising initiatives!
DonateDonateYou can make a difference in various ways: by committing as a regular monthly donor, offering a single donation, organizing fundraising events both online and in person, contributing to our special tribute funds, or through your unique fundraising initiatives!