Thank You for an Incredible 2024—Let’s Start 2025 Strong!
Thank You for an Incredible 2024—Let’s Start 2025 Strong! – LMNA online patient meeting January 2025 – Registrations are open for the 5th International Meeting on Laminopathies
LMNA Cardiac Newsletter
Thank You for an Incredible 2024 – Let’s Start 2025 Strong!
Dear LMNA Cardiac,
As we reflect on 2024, we are filled with gratitude for everything we’ve accomplished together. Whether it was raising awareness, advancing research, or building stronger support networks, you were a vital part of something extraordinary.
But our work is far from over, and your continued support is what makes everything possible.
By making a donation today, we can achieve even more in 2025:
Empower Families with LMNA Cardiac Conditions by providing access to vital resources, expert care, and a supportive community tailored to their unique challenges.
Accelerate Groundbreaking Research to uncover treatments and potential cures for LMNA cardiac diseases, offering hope for brighter futures.
Organize expert meetings and share essential information with cardiologists to enhance awareness and treatment of LMNA cardiac diseases.
Connect Families with World-Class Experts to ensure access to leading cardiac specialists and innovative care.
Build a Strong and Global Support Network that fosters shared experiences, advocacy, and collaboration.
Transform Care and Shape the Future by reducing cardiac risks and enhancing the quality of life for individuals living with LMNA cardiac conditions.
Let’s start 2025 stronger than ever—together. Can we count on you?
Yes, I’m happy to help by donating! (If you’d like to make a direct donation or a larger contribution, please contact us for assistance. We’re here to help make the process easy and impactful.)
Thank you for making 2024 unforgettable and for helping us move into 2025 with hope, determination, and purpose. Best wishes for a happy and healthy New Year!
Warm regards,
Team LMNA Cardiac Diseases Network
LMNA online patient meeting – January 2025
We’re excited to kick off the New Year with our next LMNA Cardiac Online Patient Meeting on Sunday, January 26, 2025, from 12–1:30 PM EST (6–7:30 PM CEST).
Starting in 2025, we’ll be hosting bimonthly meetings to help patients connect, share experiences, and support one another.
This video group chat is a great opportunity to:
Meet other patients living with LMNA gene mutations.
Ask questions in a supportive space.
Gain insights and encouragement from those who “get it”.
👉 Register here to save your spot! We hope to see you there.
Registrations Now Open for the 5th International Meeting on Laminopathies!
We are excited to announce that registrations are officially open for the 5th International Meeting on Laminopathies, taking place from May 21–23, 2025, at the historic Sorbonne Université, Campus des Cordeliers in Paris, France.
This highly anticipated event brings together experts, researchers, and patients to discuss the latest advancements in laminopathy research and care.
✨ Patient Get-Together We’re also planning a special patient gathering, and we encourage as many patients as possible to attend and connect with the community.
The meeting website (built with ♥ by LMNAcardiac.org) has all the details you need.
🔗 Visit the official meeting website and register today: Laminopathies.net
Every contribution, regardless of its amount, fuels crucial efforts in research, medical education, patient advocacy, and raising awareness about LMNA cardiac diseases.
You can make a difference in various ways: by committing as a regular monthly donor, offering a single donation, organizing fundraising events both online and in person, contributing to our special tribute funds, or through your unique fundraising initiatives!