December 2024 | LMNA Cardiac Newsletter

LMNA Cardiac Newsletter – December 2024

LMNA online patient meeting – January 2025 | LMNA PRIORITY Project Kickoff Meeting in Paris | 5th International Meeting on Laminopathies | Succesfull fundraising event by an LMNA patient

LMNA online patient meeting – January 2025

LMNA PRIORITY Project Kickoff Meeting in Paris

We are thrilled to share that the LMNA PRIORITY Project is set to officially launch soon! Recently, all the team leads came together in Paris to align their efforts and lay the groundwork for groundbreaking research.

Starting January 1, 2025, this consortium will focus exclusively on advancing LMNA-related research, bringing together the expertise and collaboration of leading scientists from around the world.

Supported by the prestigious LeDucq Foundation grant, this project marks a significant milestone for LMNA research and its potential impact on patient care.

To learn more about this exciting initiative, visit: LMNA PRIORITY Project LeDucq Grant

5th International Meeting on Laminopathies

We are thrilled to announce that the website for the 5th International Meeting on Laminopathies in Paris (built with ♥ by LMNACardiac.org) is now live! Registrations will open soon.

This meeting, organized by the European Consortium of Lipodystrophies, will take place from May 21–23, 2025, at the historic Sorbonne Université, Campus des Cordeliers in Paris, France.

We’re also planning a patient get-together, and we hope to see many patients joining us at this exciting event.

For more details, visit the official meeting website: Laminopathies.net

Succesfull fundraising event by a German patient

✨ A heartfelt WOW and THANK YOU to Katrin, a remarkable LMNA patient from Germany, for organizing the highly successful “Running for a Healthy Heart” charity run! 🏃‍♀️💞

This inspiring event brought people together to raise awareness and funds for LMNA cardiac research and support. Katrin’s dedication and effort serve as a shining example of how one person can make a significant impact in the fight against LMNA cardiac diseases.

Perhaps you’re inspired to start your own fundraising campaign too? It’s easy to set up here: https://donorbox.org/action-for-lmna/fundraiser/new.

Or would you like to support LMNA research? You can make a donation here: https://donorbox.org/action-for-lmna/.

Every contribution, big or small, helps us move closer to finding solutions for LMNA cardiac diseases. Together, we can make a difference and bring hope to countless lives. Thank you for your support!

Thank you for being a part of the LMNA Cardiac community. Together, we can make a difference! ❤️

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