LMNA Cardiac News
Growing Together: LMNA Updates & Events
March 27, 2025
We’re excited to share the latest opportunities to connect, learn, and grow together. From this Sunday’s video chat to our upcoming patient dinner in Paris on May 22nd, there are so many ways to get involved. Dive into our new article on dietary and lifestyle tips for living well with…Building the LMNA Network: LMNA Scandinavia Trip
March 26, 2025
After our successful U.S. tour last year (read more here), we at LMNAcardiac.org are heading to Sweden, Norway, and Finland to connect with the LMNA community. This trip supports our mission to unite patients, experts, and advocates, advancing research and support for LMNA-related cardiac conditions. Are you an LMNA patient…Join Us for the LMNA Patient Dinner in Paris – May 22nd, 2025
March 6, 2025
We are excited to announce a special Patient Dinner taking place on May 22nd, 2025, at 19:00, during the Laminopathies meeting in Paris. This event will be held at a restaurant near the conference venue, offering a wonderful opportunity for patients, families, and supporters to connect, share experiences, and enjoy…Help Us Grow the LMNA Cardiac Community – Patient Meeting & Laminopathies Meeting Reminders
January 22, 2025
LMNA Cardiac Newsletter Help Us Grow the LMNA Cardiac Community -Patient Meeting & Laminopathies Meeting Reminders Dear Sir or Madam,At LMNAcardiac.org, we’re committed to making our network and foundation as personal and impactful as possible. That's why we've updated our About Us page to give you a closer look at the dedicated team behind…Meet the Team Behind LMNAcardiac.org
January 21, 2025
At LMNAcardiac.org, we’re committed to making our network and foundation as personal and impactful as possible. That's why we've updated our About Us page to give you a closer look at the dedicated team behind the scenes. Our team works tirelessly to expand the network, raise awareness, and provide support…Help Us Grow the LMNA Cardiac Community!
January 21, 2025
We’re always looking to expand our network of LMNA patients and experts—and we need your help! Our community currently spans more than 50 countries, but in some regions, we still have only a few patients and experts connected. By spreading the word about LMNAcardiac.org to family members, other patients, and…Registrations Now Open for the 5th International Meeting on Laminopathies!
January 1, 2025
We are excited to announce that registrations are officially open for the 5th International Meeting on Laminopathies, taking place from May 21–23, 2025, at the historic Sorbonne Université, Campus des Cordeliers in Paris, France. This highly anticipated event brings together experts, researchers, and patients to discuss the latest advancements in laminopathy…Thank You for an Incredible 2024 – Let’s Start 2025 Strong!
January 1, 2025
As we reflect on 2024, we are filled with gratitude for everything we’ve accomplished together. Whether it was raising awareness, advancing research, or building stronger support networks, you were a vital part of something extraordinary.But our work is far from over, and your continued support is what makes everything possible.By…Groundbreaking Treatment at TGH Offers New Hope for Rare Cardiac Disease Patient
December 26, 2024
In a remarkable development for patients with rare cardiac conditions, Tampa General Hospital (TGH) has successfully treated a Florida woman with a cutting-edge device designed to manage her life-threatening heart disease. The patient, diagnosed with a rare genetic cardiac disorder, received a device that monitors and supports heart function in…Exciting News: 5th Laminopathies Meeting Website is Live!
December 25, 2024
We are thrilled to announce that the official website for the 5th Laminopathies Meeting is now online! The meeting will take place from May 21 to May 23, 2024, in the beautiful city of Paris, France. This is a fantastic opportunity to connect with leading researchers, clinicians, and members of…
News & Events
Subscribe To Our Newsletter
Show Your Support
Every contribution, regardless of its amount, fuels crucial efforts in research, medical education, patient advocacy, and raising awareness about LMNA cardiac diseases.
You can make a difference in various ways: by committing as a regular monthly donor, offering a single donation, organizing fundraising events both online and in person, contributing to our special tribute funds, or through your unique fundraising initiatives!
DonateDonateYou can make a difference in various ways: by committing as a regular monthly donor, offering a single donation, organizing fundraising events both online and in person, contributing to our special tribute funds, or through your unique fundraising initiatives!