Support Groups
Facebook groups
These Facebook groups are for patients and their loved ones. The groups offers support, information, and a place to connect with others who understand what you’re going through.
LMNA-Specific Group
DCM-Specific Groups
- Dilated Cardiomyopathya public group for DCM patients and family members
- Dilated Cardiomyopathy private group for DCM patients and family members
Heart Device Groups
- Living with an ICD (Support Group)
- Pacemaker Support Group
- Living with a Medtronic Pacemaker, ICD, or CRT Device
Heart Failure and/or Cardiomyopathy Groups
- Women with heart failure Cardiomyopathy and other heart conditions
- Cardiomyopathy UK This UK-based organization has a list of support groups for people with cardiomyopathy, including DCM. You can search for a group in your area on their website.
- Heart Failure Support Group This is a private group for people who suffer from heart failure and their family members
- Heart Failure Forum (by Bayer)
Websites & Resource Links
- DCM Foundation
- SADS Foundation
- The Strength to Cope: Spirituality and Faith in Chronic Disease
- Counseling / Therapy for Chronic Disease
- Women’s Heart Support Group
- American Heart Association
- American Heart Association Cardiomyopathy Forum
- Pumping Marvelous
Zoom support group meetings
- SADS Foundation ICD Support Group
- HeartSisters
- Stanford’s Cardiomyopathy Support Group meets online on the 1st Monday of the month at 6 PM Pacific Time
- Cardiomyopathy UK offers a number of online support groups, including:
- To sign up for any of the groups listed below, please visit: https://www.thecenterforchronicillness.org/programs
- Living with Chronic Illness Support Group – 4th Monday of each month from 7-8pm PST
- Creativity & Chronic Illness – A peer support group for those living with chronic illness who would like to express themselves through art facilitated by Jess Minckley, MFA. Every Sunday from 10-11:30am (PST). No artistic talent necessary. Only pen and paper needed.
- Living Mindfully with Chronic Illness – A supportive group for those wanting to live mindfully and with self-compassion facilitated by Bartja Wachtel, MSW, LICSW, MHP, CMHS 2nd and 4th Tuesday of each month from 6-7pm PST
- Supporting a Loved One with a Chronic Illness – 3rd Tuesday of each month 5.30 – 6.30pm PST. This group is virtual and is open to loved ones living anywhere.
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You can make a difference in various ways: by committing as a regular monthly donor, offering a single donation, organizing fundraising events both online and in person, contributing to our special tribute funds, or through your unique fundraising initiatives!
DonateDonateYou can make a difference in various ways: by committing as a regular monthly donor, offering a single donation, organizing fundraising events both online and in person, contributing to our special tribute funds, or through your unique fundraising initiatives!